NIDILRR Program Database Detailed Record.
Project Type/Research Category: Rehabilitation Research and Training Centers (RRTCs).
Funding Priority: Health and Function.
For more information on NIDILRR's funding priorities, read about NIDILRR's Core Areas of Research in the Long Range Plan at
https://acl.gov/sites/default/files/about-acl/2019-01/NIDILRR%20LRP-2018-2023-Final.pdf.
Rehabilitation Research and Training Center on Developmental Disabilities and Health.
This project has completed its research activities and is now closed. Check REHABDATA for documents.University of Illinois at Chicago.
College of Applied Health Sciences
Department of Disability and Human Development.
1640 West Roosevelt Road, MC 626.
Chicago, IL 60608.
E-mail: theller@uic.edu.
URL(s): http://rrtcadd.orghttp://healthmattersprogram.org.
Principal Investigator: Tamar Heller, PhD.
Public Contact Phone: 800/996-8845 (V), 312/413-1647 (V), 312/413-0453 (TTY).
Fax: 312/996-6942.
Project Number: 90RT5020 (formerly H133B130007).
About grant numbers.Start Date: October 1, 2013.
Length: 60 months.
NIDILRR Officer: Dawn Carlson, PhD, MPH.
NIDILRR Funding: FY 13 $874,992; FY 14 $874,992; FY 15 $874,999; FY 16 $874,992; FY 17 $874,994; FY 18 $0 (No-cost extension through 9/30/2019).
Abstract: This project enhances the health and function of adults with intellectual and developmental disabilities (I/DD) over their lifespan through a coordinated set of research, training, technical assistance, and dissemination activities. The goals of the center are to (1) increase the understanding of health status, health access, and health behaviors of adolescents and adults with I/DD; (2) improve the health and function of persons with I/DD through health promotion interventions; and (3) improve health care access through integrated care practices. Research activities include, but are not limited to, national database analyses of the Medical Expenditure Panel Survey, the National Health Interview Survey, Survey of Child Special Health Care Needs, and the Survey of Adult Transition and Health; a continuing prospective cohort study of health behaviors on health and function over a 10-year period, including minorities with I/DD; the development of a technology-based intervention to reduce obesity; and evaluation of the scaling up of the evidence-based “Health Matters” exercise and nutrition program for individuals with I/DD developed by the project under a previous grant. The Center includes a prospective study to assess the impact of changes in health and long-term practices to health and function, health care access, preventative services, and satisfaction of adults with I/DD in the process of a change from fee-for-service to integrated health and long-term care with specific analyses targeting persons with diabetes, heart disease, and Alzheimer’s disease. The project’s innovative training and technical assistance approaches include (1) dissemination through national provider, professional, and consumer collaborations; (2) development of user-friendly products in various formats; (3) use of the train-the-trainer and peer training models to promote local ownership of effective practices; (4) targeted promotion of systemic changes that maintain programmatic and policy changes; (5) leadership in national task forces; and (6) use of web-based technologies to provide global access to knowledge and training products, including dissemination through the project’s website, the National Center on Health, Physical Activity, and Disability, and the Health Matters Program; and (7) provision of certificate programs in disability and health promotion. This project continues its leadership role in increasing the self-determination of adults with I/DD and their families by involving consumers in all phases of its research, training, and dissemination activities.
Descriptors: Developmental disabilities, Health care, Health promotion, Intellectual Disabilities, Self determination.
Documents in REHABDATA: A researcher's advice to families of adults with disabilities: Plan . . . Plan . . . Plan.Adapting an education program for parents of children with autism from the United States to Colombia.Ageing-related experiences of adults with learning disability resident in rural areas: One Australian perspective.Aging among older adults with intellectual and developmental disabilities: Setting national goals to address transitions in health, retirement, and late-life.Aging with a physical disability in Medicaid managed care.Aging, Retirement, and End of Life for people with intellectual and developmental disabilities.Aging, Retirement, and End of Life for people with intellectual and developmental disabilities.Assessing the performance of hearing aids using surveys and audio data collected in situ.Care coordination experiences of people with disabilities enrolled in Medicaid managed care.Caregiving and family support interventions: Crossing networks of aging and developmental disabilities.Caregiving, intellectual disability, and dementia: Report of the summit workgroup on caregiving and intellectual and developmental disabilities.Consensus statement of the international summit on intellectual disability and dementia related to post-diagnostic support.Consensus statement of the international summit on intellectual disability and dementia on valuing the perspectives of persons with intellectual disability.Consensus statement of the international summit on intellectual disability and dementia related to end-of-life care in advanced dementia.Consensus statement of the international summit on intellectual disability and dementia related to nomenclature.Differences in physical health, and health behaviors between family caregivers of children with and without disabilities.Disability, insurance coverage, area deprivation and health care: Using spatial analysis to inform policy decisions.Disparities in unmet service needs among adutls with intellectual and other developmental disabilities.Dying well with an intellectual disability and dementia.Education for people with intellectual and developmental disabilities.Education for people with intellectual and developmental disabilities.Effectiveness of a HealthMessages peer-to-peer program for people with intellectual and developmental disabilities.Employment for people with intellectual and developmental disabilities.Employment for people with intellectual and developmental disabilities.Examining association between reported high cholesterol and risk factors in adults with intellectual and developmental disabilities (IDD): A five-year follow-up.Feedback and strategies from people with intellectual disability completing a personalized online weight loss Intervention: A qualitative analysis.Female Medicaid enrollees with disabilities and discussions with health care providers about contraception/family planning and sexually transmitted infections.Future prospects: A challenge to promote wellness.Guidelines for dementia-related health advocacy for adults with intellectual disability and dementia: National task group on intellectual disabilities and dementia practices.Health and wellness for people with intellectual and developmental disabilities.Health and wellness strand: Recommendations from national goals conference 2015.Health care expenditures of overweight and obese U.S. adults with intellectual and developmental disabilities.Health promotion and people with intellectual disability.Health service utilization and state costs among adults aging with early-acquired physical disabilities in Medicaid managed care.Health services appraisal and the transition to Medicaid managed care from fee for service.Health services use and costs for Americans with intellectual and developmental disabilities: A national analysis.HealthMatters for people with intellectual and developmental disabilities: Building communities of practice for health.Highlights from the international summit on intellectual disability and dementia: Implications for Brazil.Impact of adulthood stage and social-environmental context on body mass index and physical activity of individuals with intellectual disability.Impact of Medicaid managed care on Illinois's acute health services expenditures for adults with intellectual and developmental disabilities.Impact of the HealthMatters train-the-trainer program on the health and health behaviors of staff supporting adults with intellectual and developmental disabilities.Impact: Feature issue on supporting wellness for adults with intellectual and developmental disabilities.Impacts of an integrated Medicaid managed care program for adults with behavioral health conditions: The experience of Illinois.Improving health behaviours of Latina mothers of youths and adults with intellectual and developmental disabilities.Improving support for older adults with I/DD who have dementia and their families.Individual, parent and social-environmental correlates of caregiving experiences among parents of adults with autism spectrum disorder.Intellectual disability: Cultural factors.Intellectual disability: Epidemiology.Intellectual disability: Lifespan perspectives.International summit consensus statement: Intellectual disability inclusion in national dementia plans.Introduction to the special issue: National goals 2015.Issue brief: Aging and people with IDD.Issue brief: Education of students with IDD.Issue brief: Employment and economic self-sufficiency for people with IDD.Issue brief: Health and wellness for people with IDD.Issue brief: Justice and people with IDD.Issue brief: Long-term supports and services for people with IDD.Issue brief: Self-determination and self-advocacy by people with IDD.Issue brief: Social inclusion of people with IDD.Issue brief: Supporting families of people with IDD.Issue brief: Workforce for people with IDD.Justice for people with intellectual and developmental disabilities.Justice for people with intellectual and developmental disabilities.Leadership institute for people with disabilities: A legacy project of ADA 25 Chicago: Evaluation report.Life course health and healthcare utilization among adults with spina bifida.Long term services and supports for people with intellectual and developmental disabilities.Long-term services and supports.Longitudinal appraisals of family caregiving for people with disabilities enrolled in Medicaid managed care.Low levels of physical activity and sedentary behavior in adults with intellectual disability.Managed care experiences of Medicaid enrollees with disabilities: A qualitative analysis of consumer survey responses.National goals for supporting famillies across the life course.National task group early detection screen for dementia: Manual.Nurse practitioners promoting physical activity: People with intellectual and developmental disabilities.Obesity and associated factors in adults with intellectual disability.Obesity and individuals with intellectual and developmental disabilities: A research to policy brief.Padres en Acción: A parent education program for Latino parents of children with ASD.Parents taking action: A psycho-educational intervention for Latino parents of children with autism spectrum disorder.Perceptions of health and healthcare of people with intellectual and developmental disabilities in Medicaid managed care.Perceptions of healthcare of people with IDD in Medicaid managed care.Perspectives on family caregiving of people aging with intellectual disability affected by dementia: Commentary from the international summit on intellectual disability and dementia.Perspectives on the publication of qualitative research.Policy to practice: Falls in adults with intellectual disabilities.Population estimates, health care characteristics, and material hardship experiences of U.S. children with parent-reported speech-language difficulties: Evidence from three nationally representative surveys.POWERSforID: Personalized online weight and exercise response system for individuals with intellectual disability: A randomized controlled trial.POWERSforID: Personalized online weight and exercise response system for individuals with intellectual disability: Study protocol for a randomized controlled trial.Practical applications of the NTG-EDSD for screening adults with intellectual disability for dementia: A German-language version feasibility study.Pregnancy outcomes among women with intellectual and developmental disabilities.Prevalence of overweight and obesity among students with intellectual disabilities in Taiwan: A secondary analysis.Promoting collaboration between hospice and palliative care providers and adult day services for individuals with intellectual and developmental disabilities.Quality care for people with intellectual disability and advanced dementia: Guidance on service provision.Racial and ethnic disparities in perceived barriers to health care among U.S. adults with intellectual and developmental disabilities.Racial and ethnic disparities among people with intellectual and developmental disabilities.Racial and ethnic disparities among adults with intellectual and developmental disabilities.Recommendations of the self-determination and self-advocacy strand from the national goals 2015 conference.Reported gum disease as a cardiovascular risk factor in adults with intellectual disabilities.Self-determination and self-advocacy for people with intellectual and developmental disabilities.Self-determination and self-advocacy for people with intellectual and developmental disabilities.Sibling caregivers of people with intellectual and developmental disabilities: Sociodemographic characteristics and material hardship prevalence.Social Inclusion for people with intellectual and developmental disabilities.Social Inclusion for people with intellectual and developmental disabilities.Success for students and nurses with disabilities: A call to action for nurse educators.Supporting advanced dementia in people with Down syndrome and other intellectual disability: Consensus statement of the international summit on intellectual disability and dementia.Supporting nurses and nursing students with disabilities.Supports for families for people with intellectual and developmental disabilities.Supports for families for people with intellectual and developmental disabilities.Technical standards for nursing education programs in the 21st century.The impact of support services teams: Community-based behavioral health support interventions.The intersection of intellectual disability and dementia: Report of the international summit on intellectual disability and dementia.The national task group on intellectual disabilities and dementia practices consensus recommendations for the evaluation and management of dementia in adults with intellectual disabilities.Toward 2025: Promoting valued outcomes for people with IDD through national goals 2015.Utilization of and relationships with primary care providers during the transition to Medicaid managed care.Viability of a dementia advocacy effort for adults with intellectual disability: Using a national task group approach.White paper on inclusion of students with disabilities in nursing educational programs for the California committee on employment of people with disbilities (CCEPD).Why do we need national guidelines for adults with intellectual disability and dementia?.Workforce for people with intellectual and developmental disabilities.Workforce for people with intellectual and developmental disabilities.
