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Experiences of Individuals Self-Directing Medicaid Home and Community-Based Services During COVID-19

This Disability and Health journal article describes a study which sought to investigate the experiences of individuals self-directing during COVID-19. In particular, researchers used semi-structured interviews to explore the following areas: 1) How have individuals maintained access to HCBS and workers?; 2) How have individuals maintained safety against COVID-19?; and 3) How have individuals maintained their health and well-being? Three main themes emerged related to maintaining access to HCBS and direct care workers: 1) Benefits of authority to hire and fire; 2) Benefits of ability to hire family members; 15and 3) Fluctuations in needs and availability of workers. Two themes emerged related to maintaining safety against COVID-19: 1) Strategies for staying safe with workers; and 2) Barriers in public health and service system response. Three themes emerged related to maintaining health and well-being: 1) Barriers to basic needs; 2) Delaying needed care; and 3) Use of telehealth and technology.

Disability area: 
Cross disability
Life area: 
Project name: 
Community Living Policy Center
Grant number: 
Product type: 
Journal article
Date published: