News and Notes #300 February 14

NARIC presents its 300th issue of News and Notes from the NIDILRR Community and Beyond, a weekly newsletter going out to more than 4,500 subscribers; NIDILRR issues Request for Information (RIF) on the incidence of opiod use disorder among people with disabilities; Research in Focus features survey of mobility device users and the impact of these devices on the users' community participation; Center on Knowledge Translation for Disability and Rehabilitation Research (KTDRR) posts archived presentation from the 2017 Online KT Conference; project on Measurement of Community Participation Using a Computer Adaptive Test in Persons with Burn Injuries releases video, LIBRE Profile: Perspectives from Phoenix World Burn Congress (PWBC), featuring interviews with burn injury survivors who helped develop the Life Impact Burn Recovery Evaluation (LIBRE) Profile; Collaborative on Health Reform and Independent Living (CHRIL) seeks participants for survey of adults with disabilities using health insurance and health care services; Rehabilitation Research and Training Center on Employment for Individuals with Physical Disabilities to host Customized Employment Webcourse, open to service providers who support job seekers and employees with disabilities; Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) featured special lecture on Sexual and Reproductive Health in Persons with Disabilities.

Date sent: 
2018-02-14
NARIC news: 

Welcome to the 300th issue of News and Notes from the NIDILRR Community and Beyond! Looking back, we're amazed at how our weekly newsletter has grown. News and Notes now goes out to more than 4,500 subscribers, including more than 450 government personnel (state, local, and federal), over 1,000 faculty and students, and many individuals with and without disabilities around the world. Since 2012, we've introduced more than 300 resources from NIDILRR-funded projects, shared more than 600 events and opportunities to participate in research, and featured more than 1,000 news updates from the NIDILRR community. Our Research In Focus series is now in its third year and going strong. We've also highlighted more than 300 resources and events from the greater disability and rehabilitation community. Every issue is archived on our website and translated into Spanish. We hope you find something to share in every issue of News and Notes and look forward to the next 300 issues!

Research In Focus:
For People with Mobility Disabilities, High-Quality Mobility Devices May Be Key for Community Involvement and Independence
This week's Research In Focus looks at a survey of mobility device users and how the quality, reliability, and ease of maintenance of these devices may impact participation in the community.

Resource Highlight: 

Presentations from the 2017 Online KT Conference Now Available
The NIDILRR-funded Center on Knowledge Translation for Disability and Rehabilitation Research (KTDRR) (90DPKT0001) has posted archived presentations from the 2017 Online KT Conference. The theme for the conference was Overcoming Barriers to Outreach. Resources include captioned YouTube videos, edited transcripts, and downloadable copies of presentation files. The archived materials have been preapproved for up to 9.5 CRC-CEUs through October 29, 2018.

LIBRE Profile Perspectives from the PWBC
The NIDILRR-funded project on Measurement of Community Participation Using a Computer Adaptive Test in Persons with Burn Injuries (90DP0055) released a video, LIBRE Profile: Perspectives from Phoenix World Burn Congress (PWBC). The video features interviews with burn injury survivors who helped develop and test the Life Impact Burn Recovery Evaluation (LIBRE) Profile. Participants reflect on the value of the LIBRE Profile in helping burn survivors adjust to life in the community.

NIDILRR News and Events: 

Request for Information: Opioid Use Disorder Among People with Disabilities
NIDILRR has issued a Request for Information (RFI) (PDF), seeking input on the incidence of opioid use disorder among people with disabilities. This information will help NIDILRR determine what research might be needed to inform interventions and/or policies to mitigate the effects of opioid use disorder on people with disabilities. Topics of particular interest include opioid use among common subgroups of people with disabilities and their secondary conditions, and/or the effectiveness of existing or adapted treatment strategies for opioid use disorder among people with disabilities. Comments should be submitted via email to sarah.ruiz@acl.hhs.gov. All comments must be submitted by February 20th to be assured consideration.

Grantee event: 

Webcourse: Customized Employment
The NIDILRR-funded Rehabilitation Research and Training Center on Employment of Individuals with Physical Disabilities (90RT5035) will host a Customized Employment Webcourse, March 5th - April 2nd. The course is open to service providers who support job seekers and employees with disabilities. Individual modules define customized employment, describe the principles that illustrate organizational commitment to customized employment, describe the role of a personal representative, explain the discovery process and why it is the foundation of job development, discuss ways to learn about businesses' employment needs, and more. Registration is required and there is a fee for the course.

Participate: 

Health Care Survey
The NIDILRR-funded Collaborative on Health Reform and Independent Living (CHRIL) (90DP0075) is conducting a survey of adults with disabilities about getting and using health insurance and health care services. The online survey is open to adults 18 to 64 years old with any type of disability and any type of health insurance. Responses are anonymous. Qualified participants may enter to win a $100 gift card.

Elsewhere in the Community: 

NICHD Special Lecture on Sexual and Reproductive Health in Persons with Disabilities
The Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) recently featured a special lecture, Sexual and Reproductive Health in Persons with Disabilities, with guest lecturer Tom Shakespeare, PhD. Dr. Shakespeare discussed mainstreaming sexual and reproductive health of people with disabilities, including the positive and negative experiences of people with disabilities as partners and parents, and the importance of including people with disabilities in research and discussions of reproductive health. The lecture includes frank discussion of sexuality.