News and Notes 310 April 25

NARIC features NIDILRR-funded research on autism sprectrum disorder (ASD) in its latest Spotlight blog; Research in Focus highlights a mentoring program that may help college students with visual impairments find employment; Rehabilitation Research and Training Center on Community Living and Participation of Individuals with Psychiatric Disabilities (TU Collaborative) publishes manual for its Bike Share Intervention: Improving Wellness & Community Access; technology developed with support from Technology Increasing Knowledge: Technology Optimizing Choice Rehabilitation Engineering Research Center (TIKTOC RERC) is featured in New medical devices help doctors with disabilities, published in University of Michigan News; Collaborative on Health Reform and Independent Living (CHRIL) seeks participants for a survey of adults with disabilities about getting and using health insurance and health care services; Southeast ADA Regional Center hosts episode 56 of ADA Live!, Disability and Aging: Medicare, Medicaid, and Benefits Enrollment Assistance; Spaulding Hospital-New England Spinal Cord Injury Center (SNERSCIC) hosts webinar, Physical Activity and Mobility Impairments; National Center for Complementary and Integrative Health Science at the National Institutes of Health (NIH) offers Know the Science, a collection of resources to help consumers understand complex scientific topics related to health research.

Date sent: 
2018-04-25
NARIC news: 

In April, several organizations focus on awareness and acceptance of autism spectrum disorder (ASD), which the Autistic Self Advocacy Network defines as a neurological variation that occurs in about 1% of the population and is classified as a developmental disability. Research in ASD seeks to understand the needs of individuals with ASD across the lifespan and to develop programs, technologies, and policies to support full inclusion for these individuals and their families. You can read about some of the current NIDILRR-funded work in this area in our latest Spotlight blog post.

Research In Focus:
For College Graduates Who Are Legally Blind, Finding a Job Can Be Tough, but Mentoring May Help
This week's Research In Focus highlights a mentoring program which may help college students with visual impairments make their way in the workforce.

Resource Highlight: 

Bike Share Intervention: Improving Wellness & Community Access
The NIDILRR-funded Rehabilitation Research and Training Center on Community Living and Participation of Individuals with Psychiatric Disabilities (TU Collaborative) (90RT5021) has published the manual for its Bike Share Intervention: Improving Wellness & Community Access. The manual describes the benefits of biking for exercise, independent transportation, and community engagement for individuals with serious mental illness, and some of the barriers to biking as an activity. The manual outlines a pilot study which introduced biking as an exercise and community participation activity and utilized a bike share program to address financial and access barriers to bike equipment. The program was featured in a recent Temple News article and will be discussed in a webinar hosted by the TU Collaborative May 3rd, 1-3pm ET. Registration is free and required for the webinar.

News items: 

New Medical Devices Support Inclusive Medical Workforce
Technology developed with support from the NIDILRR-funded Technology Increasing Knowledge: Technology Optimizing Choice Rehabilitation Engineering Research Center (TIKTOC RERC) (90RE5012) is featured in New medical devices help doctors with disabilities from University of Michigan News. The article and related video showcase a modified scope used by medical practitioners to examine a patient's skin, ears, eyes, nose, mouth, and throat. The scope, developed with the support of the TIKTOC RERC Small Grants program, uses a long, flexible wire and a camera which can transmit images to a smartphone or tablet, allowing a physician to examine the patient without needing to be in direct contact. The scope has potential benefit for medical practitioners with disabilities and may also be useful for telemedicine.

Grantee event: 

ADA Live! Disability, Aging, Medicare, and Medicaid
The NIDILRR-funded Southeast ADA Regional Center (90DP0090) will host episode 56 of ADA Live!, Disability and Aging: Medicare, Medicaid, and Benefits Enrollment Assistance, May 2nd, 1-1:30pm ET. Presenters will share an overview of the parts of Medicare, enrollment, and what services are and are not covered under the program. Presenters will also discuss ways that clients can apply for assistance covering their Medicare costs, how Medicare coordinates with other coverage like Medicaid, and community resources to help answer complex Medicare questions. Registration is free and required.>

Webinar: Physical Activity and Mobility Impairments
The NIDILRR-funded Spaulding Hospital-New England Regional Spinal Cord Injury Center (SNERSCIC) (90SI5012) will host a webinar, Physical Activity and Mobility Impairments, May 2nd, 2-3pm ET. Presenters from the National Center on Health, Physical Activity, and Disability (NCHPAD) will discuss adaptive exercise for people with SCI and other mobility limitations. Registration is free and required.

Participate: 

Health Care Survey
The NIDILRR-funded Collaborative on Health Reform and Independent Living (CHRIL) (90DP0075) is conducting a survey of adults with disabilities about getting and using health insurance and health care services. The online survey is open to adults 18 to 62 years old with any type of disability and any type of health insurance. Individuals who are male, live in Southern states, or are from minority communities are particularly needed. Responses are anonymous. Qualified participants may enter to win a $100 gift card with weekly drawings through May 31st.

Elsewhere in the Community: 

Know the Science
The National Center for Complementary and Integrative Health (NCCIH) at the National Institutes of Health (NIH) offers Know the Science, a collection of resources to help consumers to better understand complex scientific topics related to health research. The site features a variety of materials including interactive modules, quizzes, videos, and factsheets providing engaging, straightforward content about health research, so that readers can be more discerning about what they hear and read about new or alternative treatments and make well-informed decisions about their health. While complementary approaches are occasionally highlighted, the materials cover topics common to all areas of health research.