News and Notes 339 November 21

NARIC has organized its recently published materials in Spanish into a browsable collection that includes factsheets, guides, articles, and more; the Southwest ADA Regional Center publishes new factsheet, Disability Rights Laws for Public Primary and Secondary Education; principal investigators from several NIDILRR-funded Traumatic Brain Injury (TBI) Model System Centers co-author article, Thirty years of National Institute on Disability, Independent Living, and Rehabilitation Research Traumatic Brain Injury Model Systems Center Research -- An Update, in the Journal of Head Trauma Rehabilitation (JHTR); the Great Lakes ADA Regional Center hosts webinar, Common Sources of Confusion in the ADA and ABA Standards, explaining certain provisions in the Americans with Disabilities Act and Architectural Barriers Act; the Boston-Harvard Burn Injury Model System Center (BHBIMS) seeks participants who have survived burns to more than 5% of their body or to hands, feet, face, or genitalia, to take the LIBRE Profile Survey; the Centers for Disease Control and Prevention (CDC) offer a collection of information and resources for acute flaccid myelitis (AFM), a rare but serious condition affecting the nervous system, causing muscles and reflexes in the body to become weak.

Date sent: 
2018-11-21
NARIC news: 

You may know we publish a Spanish website, complete with Information Resource Brochures and FAQ articles and our Research In Focus articles, plus we publish our blog posts in Spanish and English, but did you know we're not the only members of the NIDILRR community who publish in Spanish? We've assembled a collection of recently published materials from grantees that were either originally published in Spanish or translated from English. These include factsheets, guides, articles, and much more. We've organized them into a browsable collection, complete with a finding aid, and we will continue to add to this collection as new materials are published. If you are a NIDILRR grantee who publishes in Spanish, please alert our bilingual information specialist so we may add your material to the collection! NARIC's offices will be closed this Thursday (Thanksgiving Day in the US). We wish you all a very happy Thanksgiving!

Resource Highlight: 

Factsheet on Disability Rights Laws for Public Primary and Secondary Education
The NIDILRR-funded Southwest ADA Regional Center (90DP0092) has published a new factsheet, Disability Rights Laws for Public Primary and Secondary Education. The factsheet explains the general obligations that public elementary and secondary schools have toward students with disabilities and discusses how Federal legislation such as the Individuals with Disabilities Education Act (IDEA), Section 504 of the Rehabilitation Act, and the Americans with Disabilities Act (ADA) affect the rights of students with disabilities. The factsheet also briefly touches upon bullying, nonacademic services, enforcement, and discrimination, and provides resources for parents and educators.

News items: 

30 Years of TBI Model Systems Research Highlighted in Journal of Head Trauma Rehabilitation
Principal investigators from several NIDILRR-funded Traumatic Brain Injury (TBI) Model System Centers (90DPTB0005, 90DPTB0007, 90DPTB0009, 90DP0084) recently co-authored an article, Thirty years of National Institute on Disability, Independent Living, and Rehabilitation Research Traumatic Brain Injury Model Systems Center Research—An update, in the Journal of Head Trauma Rehabilitation (JHTR). The article highlights many of the accomplishments of this well-established, multicenter TBI research consortium. Among the achievements, the article focuses on recent research activities, including the long-term National Database and efforts to translate research advances into improvements in the care and rehabilitation of patients with TBI. The article is available free of charge from the JHTR website.

Grantee event: 

Webinar: Common Sources of Confusion in the ADA and ABA Standards
The NIDILRR-funded Great Lakes ADA Regional Center (90DP0091) will host a webinar, Common Sources of Confusion in the ADA and ABA Standards, December 6th, 2:30-4pm ET. Certain provisions in the Americans with Disabilities Act (ADA) and Architectural Barriers Act (ABA) Accessibility Standards are prone to misinterpretation and generate many of the technical inquiries the US Access Board receives. This webinar will review these “hot spots” in the standards and aims to untangle common sources of confusion, including those concerning application of the standards in new construction and alterations, employee work areas, toilet rooms, signs, detectable warnings, and other topics. Registration is free and required.

Participate: 

LIBRE Journey Study
The NIDILRR-funded Boston-Harvard Burn Injury Model System Center (BHBIMS) (90DPU0001) seeks adult burn survivors to take the LIBRE Profile Survey. Participation is open to burn survivors over 18 years old with burns to more than 5% of their body or to hands, feet, face, or genitalia. Participants will be asked to take the LIBRE Profile Survey at five different time points to answer questions related to social recovery. Participants will be compensated with an Amazon gift card up to $100 in value. Contact the BHBIMS at bostonharvardbims@partners.org or 617/952-6302 for screening and volunteer information.

Elsewhere in the Community: 

About Acute Flaccid Myelitis
The Centers for Disease Control and Prevention (CDC) offer a collection of information and resources for acute flaccid myelitis (AFM), a rare but serious condition that affects the nervous system, causing the muscles and reflexes in the body to become weak. While less than 1 in 1 million people in the US will be affected by AFM, the CDC has noted a recent rise in cases, particularly in children. Information resources are available for parents, clinicians, health departments, and others to learn about symptoms, medical treatments, and physical and occupational therapy options for long-term recovery and rehabilitation, as well as current research and tracking activities.