News and Notes 341 December 5

Honoring President George H. W. Bush and his work to pass the Americans with Disabilities Act (ADA); Research In Focus compares ways people with spinal cord injury (SCI) may be able to improve their health; the Rehabilitation Engineering Research Center on Improving the Accessibility, Usability, and Performance of Technology for Individuals who are Deaf or Hard of Hearing (DHH-RERC) publishes the first in a series of profiles of Network of Consumer Hearing Assistive Technology Trainers (N-CHATT) members; Dorothy Nary, PhD was interviewed by KCUR public radio on improving the visitability for the holidays; an article authored by investigators from several Traumatic Brain Injury Model System Centers (TBIMS) was selected as the Rehabilitation Science Spotlight article of the month; the Great Lakes ADA Regional Center will host a webinar on accessing cultural programs and the arts by people with disabilities; the Southeast ADA Regional Center will host a webinar on resources that help expand opportunities for career pathways; the Collaborative on Health Reform and Independent Living (CHRIL) is conducting interviews with adults with disabilities about their experiences accessing health insurance and healthcare services; and the National Academies of Sciences, Engineering, and Medicine released a report about the proceedings of a workshop on harnessing mobile devices for nervous system disorders.

Date sent: 
2018-12-05
NARIC news: 

Today marks a national day of mourning for George H.W. Bush, the 41st president of the US who passed away on November 30th. Among his achievements, President Bush championed the Americans with Disabilities Act (ADA), signing it into law in July 1990. In an interview on National Public Radio, Lex Frieden, principal investigator for the NIDILRR-funded Southwest ADA Regional Center and one of the architects of the ADA, said that the ADA changed the landscape for people with disabilities. Frieden attributed the ADA's success to President Bush's leadership and his unwavering refusal to compromise on the law. Learn more about the impact of the ADA with this collection of Spotlight blog posts.

Research In Focus:
Exercise Training or a High-Protein Diet May Improve Insulin Sensitivity in People with Long-Standing Spinal Cord Injury

This week's Research In Focus compares two ways people with spinal cord injuries may be able to improve their health and possibly prevent diabetes.

Resource Highlight: 
N-CHATT Trainer Profiles: Empowering People with Hearing Loss
The NIDILRR-funded Rehabilitation Engineering Research Center on Improving the Accessibility, Usability, and Performance of Technology for Individuals who are Deaf or Hard of Hearing (DHH-RERC) (90RE5020) recently published N-CHATT Trainer Empowering People with Hearing Loss Through Her Work, the first in a series of profiles of Network of Consumer Hearing Assistive Technology Trainers (N-CHATT) members. Shelley Gladden is a statewide trainer for N-CHATT, a volunteer train-the-trainer program supporting the successful integration of hearing assistive technology (HAT) at work, home, and in the community. In addition, Ms. Gladden helps people with hearing loss access HAT information and resources through her work at Oklahoma ABLE Tech, the state’s Assistive Technology Act Program funded by the Administration for Community Living (ACL).
 
News items: 
Improving Visitability for the Holidays 
Dorothy Nary, PhD, a 2011 Switzer Fellow (H133F110017) and member of the NIDILRR-funded Rehabilitation Research and Training Center on Promoting Interventions for Community Living (90RT5043), was interviewed by KCUR public radio. At this time of year, many private homes will host events for family and friends, but few of these homes may be accessible to guests with disabilities. Dr. Nary discussed ways hosts can make their homes more accessible, or visitable, to guests during the holidays.
 
TBIMS Article Selected as Spotlight Article of the Month by the APA
An article, Longitudinal examination of resilience after traumatic brain injury: A Traumatic Brain Injury Model Systems study, authored by investigators from several NIDILRR-funded Traumatic Brain Injury Model System Centers (TBIMS) (90DP0030, 90DP0033, 90DP0034, 90DP0039, 90DP0044, 90DP0046) was selected as the Rehabilitation Science Spotlight article of the month by Division 22 of the American Psychological Association (APA). The article, which was published in Archives of Physical Medicine and Rehabilitation, evaluates resilience after a moderate to severe traumatic brain injury (TBI). The article was selected because it addresses a need for research in resilience and TBI, which is not well studied in this condition.
 
Grantee event: 
Webinar: Access to Cultural Programs and the Arts: Serving Patrons with Disabilities
The NIDILRR-funded Great Lakes ADA Regional Center (90DP0086) will host a webinar, Access to Cultural Programs and the Arts: Serving Patrons with Disabilities, December 11th, 2-3:30pm ET. Presenters from the Chicago Cultural Accessibility Consortium will discuss efforts to ensure that patrons with disabilities have opportunities to access the rich and diverse cultural programs and arts available in the Chicago area. They will address how cultural organizations can best include and welcome all visitors, including visitors with disabilities. Registration is free and required. Continuing education credits are available.
 
Webinar: Resources That Help Expand Opportunities for Career Pathways: "Freshman Year for Free"
The NIDILRR-funded Southeast ADA Regional Center (90DP0090) will host a webinar, Resources That Help Expand Opportunities for Career Pathways: "Freshman Year for Free", December 11th, 3-4pm ET. Presenters will discuss the history and concept of Modern States, which recognizes the need to make college more accessible and affordable for high school students, college students, and adult learners with and without disabilities. Presenters will also discuss availability of classes taught by top quality college professors, how to enroll, and how to participate. Registration is free and required.
 
Participate: 
Interviews About Healthcare Experiences
The NIDILRR-funded Collaborative on Health Reform and Independent Living (CHRIL) (90DP0075) is conducting interviews with adults with disabilities about their experiences accessing health insurance and healthcare services. Interview opportunities are open to adults 18 to 63 years old anywhere in the US with any type of disability and/or chronic health condition. People of color and men are encouraged to participate. Interviews will last between 20 and 40 minutes and participants will be compensated for their time. Complete the screening form, email healthsurvey@ku.edu, or call 855/556-6328 for more information or to express interest.
 
Elsewhere in the Community: 
Harnessing Mobile Devices for Nervous System Disorders
The National Academies of Sciences, Engineering, and Medicine released a report, Harnessing Mobile Devices for Nervous System Disorders: Proceedings of a Workshop. The workshop, held in June 2018, brought together a diverse group of stakeholders to explore innovative approaches to using devices and mobile health technology for central nervous system disorders; share approaches and lessons across efforts to apply technology in different disorders; and discuss regulatory, privacy, ethical, security, and practical issues that arise when using devices for these disorders. The full report is available free of charge.