News and Notes 349 February 13
In observance of Valentine's Day, NARIC has gathered resources and research from the NIDILRR community and elsewhere in its Spotlight blog to help support in building positive relationships; Research in Focus discusses findings that growing up with parents with disabilities can be a positive experience; the University of Wisconsin Traumatic Brain Injury Model System Center (UWTBIMS) publishes latest issue of its newsletter, TBI Model System Updates, focusing on TBI and relationships; principal investigator for Innovation in Disability Empowerment and Service Delivery, research director for the Rehabilitation Engineering Research Center from Cloud to Smartphone - Accessible and Empowering Information and Communication Technology (ICT), and co-director for Promoting Independence and Self-Management Using mHealth, is featured in the APMR January 2019 RehabCast; the Center on Knowledge Translation for Disability and Rehabilitation Research (KTDRR) hosts webcast, Overview of Systematic Review and Research Synthesis; the Great Lakes ADA Regional Center hosts webinar, The ADA, Businesses, and Barrier Removal: What Are the Requirements?; the Rehabilitation Engineering Research Center on Augmentative and Alternative Communication (RERC on AAC) hosts 2019 Student Research and Design Competition; the President's Committee for People with Intellectual Disabilities (PCPID) will host a series of virtual and in-person meetings to discuss their 2019 report to the President.
Tomorrow is Valentine's Day, a day to celebrate positive relationships with the people in our lives, from spouses and significant others to BFFs (best friends forever). For people with and without disabilities, healthy relationships with partners, family, and friends are an important part of living independently and fully participating in the community. These relationships offer people different ways to support each other, share interests and activities, and build memories. Our Spotlight blog highlights resources and research from the NIDILRR community and elsewhere to support building these positive relationships. Whether you're celebrating with a quiet evening with your partner or gathering with friends or family, we wish you a Happy Valentine's Day!
Research In Focus:
Young Adult Children of Parents with Disabilities Can Experience High Self-Esteem and Positive Childhoods
In this week's Research In Focus, researchers asked young adult children of parents with disabilities about growing up with a parent with a disability, finding it can be a positive experience.
UWTBIMS Newsletter: TBI and Relationships
The NIDILRR-funded University of Washington Traumatic Brain Injury Model System Center (UWTBIMS) (90DPTB0008) has published the latest issue of its newsletter TBI Model System Updates (PDF), focusing on TBI and relationships. The lead article discusses how a TBI can have a significant impact on the relationship between the TBI survivor and their spouse or partner, along with resources for recovery and support. The issue includes personal stories from a couple who experienced TBI, and their advice for other couples on the same journey.
NIDILRR Researcher Featured in APMR RehabCast
Brad Dicianno, MD, principal investigator for the NIDILRR-funded project on Innovation in Disability Empowerment and Service Delivery (90DPGE0002), was featured in the January 2019 RehabCast podcast from the Archives of Physical Medicine and Rehabilitation (APMR). Dr. Dicianno is also a part of other NIDILRR-funded projects, where he serves as research director for the Rehabilitation Engineering Research Center from Cloud to Smartphone - Accessible and Empowering Information and Communication Technology (ICT) (90RE5018) and co-director for the project on Promoting Independence and Self-Management Using mHealth (90DP0064). In the podcast, Dr. Dicianno discussed a new systematic review published in the January issue of APMR to define how medical mobile applications (mHealth apps) have been used in physical medicine and rehabilitation. He also discussed development of the iMHere app, an mHealth platform developed under the NIDILRR-funded projects, that promotes clinician-guided self-care to patients with chronic diseases.
Webcast: Overview of Systematic Review and Research Synthesis
The NIDILRR-funded Center on Knowledge Translation for Disability and Rehabilitation Research (KTDRR) (90DPKT0001) will host a webcast, Overview of Systematic Review and Research Synthesis, February 20th, 3-4pm ET. Presenters will describe the benefits of evidence from systematic reviews (SR), different types of reviews and differences between SR and research syntheses (RS), organizations supporting and conducting SR/RS, and the basic steps in SR/RS. This webcast is the first in a five-part training course, offered in partnership with the Campbell Collaboration, that focuses on high-quality methods for synthesis of evidence. Registration is free and required.
Webinar: The ADA, Businesses, and Barrier Removal - What Are the Requirements?
The NIDILRR-funded Great Lakes ADA Regional Center (90DP0091) will host a webinar, The ADA, Businesses, and Barrier Removal: What Are the Requirements?, February 19th, 2-3:30pm ET. Obligations for businesses operating from existing buildings continues to be one of the most misunderstood requirements of the Americans with Disabilities Act (ADA). Presenters will discuss the ADA requirements for readily achievable barrier removal and how they apply to a place of public accommodation. Registration is free and required by February 18th. Continuing education recognition is available.
2019 Student Research & Design Competition: AAC to Support Full Participation
The NIDILRR-funded Rehabilitation Engineering Research Center on Augmentative and Alternative Communication (RERC on AAC) (90RE5017) will host the 2019 Student Research and Design Competition. The theme for the competition this year is Augmentative and Alternative Communication to Support Full Participation, which encourages students to address the challenge of supporting communication for people with complex communication needs in achieving full participation in society. The competition is open to high school, undergraduate, and graduate students. Entries can address a wide variety of topics, including improved AAC interfaces, access techniques, and improved service delivery. Submission guidelines and additional requirements are available from the competition website. The competition deadline is May 4th.
PCPID to Host Virtual and In-Person Meetings
The President's Committee for People with Intellectual Disabilities (PCPID) will host a series of meetings to discuss their 2019 report to the President. A virtual meeting will be held on March 4th, 11am-12:30pm ET. To listen in, call 888/949-2790 and use the pass code 1989852. In-person meetings will be held on March 21st and 22nd, 9:30am-4:30pm ET each day, at the Hubert H. Humphrey Building in Washington, DC. The same call-in option will be available for these meetings to listen remotely<. For more information, contact Allison Cruz, Director, Office of Innovation at Allison.Cruz@acl.hhs.gov or by calling 202/795-7334.