News and Notes 374 August 7

NARIC staff mourns the death of Pro Football Hall of Famer Nick Buoniconti, who, following his son's 1985 spinal cord injury, helped fund the Miami Project to Cure Paralysis, where colleagues at the South Florida SCI Model System Center participate in ongoing research; the Rehabilitation Research and Training Center for Pathways to Positive Futures: Building Self-Determination and Community Living and Participation (Pathways RTC) develops two Achieve My Plan (AMP) E-Modules to enhance the skills of people who work with youth and young adults with serious mental health conditions; the Rehabilitation Research and Training Center on Employment Policy and Measurement (EPM-RRTC) and the RRTC on Disability Statistics and Demographics (Stats RRTC) publish the July 2019 National Trends in Disability Employment (nTIDE) Jobs Report, showing rising economic indicators for Americans with disabilities outpacing those of Americans without disabilities; the Pacific ADA Regional Center hosts webinar, ADA National Network Learning Session: FEMA's Office of Disability Integration & Coordination - Who We Are & How We Serve; the Great Lakes ADA Regional Center hosts webinar, Insights on Traveling with a Mobility Disability, discussing the Air Carriers Access Act (ACAA) and the ADA and how they apply to travelers with disabilities; the Rehabilitation Research and Training Center on Employment for Individuals with Blindness and Other Visual Impairments seeks participants to field test 4to24, an app for youth with blindness or visual impairment (B/VI) or deaf-blindness (DB) and their parents; the Office of Minority Health at the Centers for Medicare and Medicaid Services (CMS) releases several new resources to improve access to health care for people with disabilities, including Modernizing Health Care to Improve Physical Accessibility, Getting the Care You Need: A Guide for People with Disabilities, and Navigating Health Care with a Disability: Our Stories, a Focus on the Provider.

Date sent: 
2019-08-07
NARIC news: 

Last week, the spinal cord injury (SCI) community lost a friend and a fighter for research and rehabilitation when Nicholas Buoniconti passed away. As our director Mark Odum commented, "Nick Buoniconti was a champion on and off the football field. On the field his accomplishments earned him a place in the Pro Football Hall of Fame.  But it was off the field where his efforts touched the lives of hundreds of thousands of persons with SCI." Following his son's SCI in 1985, Mr. Buoniconti helped to found The Miami Project to Cure Paralysis, where some of our colleagues at the South Florida SCI Model System Center participate in ongoing research. Through the Miami Project and the Buoniconti Fund, Mr. Buoniconti raised more than $500 million to support research into SCI, brain injury, and paralysis. He also supported research into the long-term effects of sports-related concussions such as he experienced during his career as a linebacker. At his request, his brain will be donated to the Chronic Traumatic Encephalopathy (CTE) Center of Boston University which is studying the degenerative effects of CTE linked to head trauma.

Resource Highlight: 

AMP E-Module Interactive Learning Tools
The NIDILRR-funded Rehabilitation Research and Training Center for Pathways to Positive Futures: Building Self-Determination and Community Living and Participation (Pathways RTC) (90RT5030) has developed two Achieve My Plan (AMP) E-Modules to enhance the skills of people who work with youth and young adults with serious mental health conditions. The modules use videos and interactivity to create effective and engaging learning experiences. Questions in Person-Centered or Youth-Driven Conversations focuses on identifying specific types of open-ended questions used in one-on-one conversations. Youth-Driven Conversation - Avoiding Some Common Mistakes enhances learners' skills with effective interviewing techniques by helping them examine conversational patterns, relationship-building, framing, and methods to enhance self-determination. Study guides for both modules are also available. This project is also supported by the Substance Abuse and Mental Health Services Administration (SAMHSA).

News items: 

nTIDE July Report: Economic Indicators Rise Again for Job Seekers with Disabilities
The NIDILRR-funded Rehabilitation Research and Training Center on Employment Policy and Measurement (EPM-RRTC) (90RT5037) and the RRTC on Disability Statistics and Demographics (Stats RRTC) (90RTGE0001) have published the July 2019 National Trends in Disability Employment (nTIDE) Jobs Report, reporting that economic indicators have risen again for Americans with disabilities and are outpacing the modest gains for Americans without disabilities. According to the report, July is the second consecutive month to show meaningful improvements in these indicators. This report and the latest research in employment were discussed in the nTIDE Lunch & Learn webcast, archived on the project's website.

Grantee event: 

Webinar: FEMA's Office of Disability Integration & Coordination - Who We Are & How We Serve TOMORROW

The NIDILRR-funded Pacific ADA Regional Center (90DP0081) will host a webinar, ADA National Network Learning Session: FEMA's Office of Disability Integration & Coordination - Who We Are & How We Serve, TOMORROW, 2:30-4pm ET. Presenters will provide an overview of the strategic vision of the Office of Disability Integration & Coordination (ODIC) at the Federal Emergency Management Agency (FEMA) and will provide updates on current policy and program initiatives aimed at improving access for persons with disabilities before, during, and after disasters. Registration is free and required. Certificates of participation in the webinar are available.

Webinar: Insights on Traveling with a Mobility Disability
The NIDILRR-funded Great Lakes ADA Regional Center (90DP0091) will host a webinar, Insights on Traveling with a Mobility Disability, August 20th, 2-3:30pm ET. Presenters will discuss the Air Carriers Access Act (ACAA) and the Americans with Disabilities Act (ADA) and how they apply to travelers with disabilities. Presenters will also share their personal experiences as travelers who use wheelchairs and the tips and tricks they've developed over more than 20 years of travel. Registration is free and required. Continuing education recognition is available.

Participate: 

Field Test of 4to24 Employment App for Youth and Parents
The NIDILRR-funded Rehabilitation Research and Training Center on Employment for Individuals with Blindness or Other Visual Impairments (90RT5040) seeks participants to field test 4to24, an app for youth with blindness or visual impairment (B/VI) or deaf-blindness (DB) and their parents. The reminder system will focus on transition and independence. Participation is open to youth ages 16 to 24 with B/VI and parents of youth ages 4 to 24 with either B/VI or DB. Participants will test the app during a six-month trial period and will complete a series of surveys about the app and their experience. Participants who complete the final survey of the study will receive a thank-you gift card of $35. Interested individuals should complete the Center's participant registry.

Elsewhere in the Community: 

New CMS Resources Focus on Access to Health Care
The Office of Minority Health at the Centers for Medicare and Medicaid Services (CMS) released several new resources to improve access to health care for people with disabilities. Modernizing Health Care to Improve Physical Accessibility (PDF) offers guidance on how to increase the physical accessibility of medical services. The guide includes tools to assess the accessibility of a practice or a facility and tips and training materials to support efforts to reduce barriers and improve quality of care for people with disabilities. Getting the Care You Need: A Guide for People with Disabilities (PDF) informs patients with disabilities of their rights to equal access to health care. The guide includes an appointment checklist for use before, during, and after a medical appointment. Navigating Health Care with a Disability: Our Stories, a Focus on the Provider is a video featuring people with physical disabilities discussing their experiences in finding and working with health care providers who understand their needs.