News and Notes 381 September 25

In observance of Pain Awareness Month, NARIC's Spotlight blog features the latest research and resources on pain, pain management, and opioid use disorder from the NIDILRR community and elsewhere; Research in Focus looks at the use of graphics in augmentative and alternative communication devices to help children with autism spectrum disorders build word recognition skills; the project on Improving Assessment of Opioid Use Disorder in People with Disabilities Related to Chronic Musculoskeletal Pain publishes new brief, What I want My Doctor to Know About How Arthritis and Chronic Pain Affect My Everyday Life; the Northern New Jersey Spinal Cord Injury System Center (NNJSCIS) hosts episode of the SCI Grand Rounds on emergency preparedness and SCI, Uh-Oh, the Sky Is Falling: Emergency Preparedness for People with Spinal Cord Injury; the Southeast ADA Regional Center hosts episode of ADA Live!, Do You Want a Job or a Career: Reflections on National Disability Employment Awareness Month (NDEAM); the Great Lakes ADA Regional Center hosts webinar, Accessible Toilet Rooms, reviewing requirements in compliance with the Americans with Disabilities Act (ADA) and Architectural Barriers Act (ABA); the National Center for Complementary and Integrative Health (NCCIH) at the National Institutes of Health (NIH) publishes latest edition of NCCIH Clinical Digest for Health Professionals, Mind and Body Approaches for Chronic Pain.

Date sent: 
2019-09-25
NARIC news: 

September is Pain Awareness Month. The American Chronic Pain Association estimates that one in three Americans lives with chronic pain and it is the leading cause of disability among adults in the US. Chronic pain can be continuous or intermittent and often has no cure or way to remove the source of the pain. It can occur alongside other disabilities such as traumatic brain injury, depression, and burn injuries. As covered in today's Resource Highlight, opioids can help with managing chronic pain, but individuals and their care teams should be aware of and open about opioid use disorder as they discuss treatment plans. We looked at some of the latest research and resources on pain, pain management, and opioid use disorder from the NIDILRR community and elsewhere in our Spotlight blog.

Research In Focus:
Animation May Help Children with Autism Spectrum Disorders Learn to Use Symbol-Based Communication Devices
Research In Focus looks at whether animated graphics in augmentative and alternative communication devices could help children with autism spectrum disorders build their word recognition skills.

Resource Highlight: 

What I Want My Doctor to Know About How Arthritis and Chronic Pain Affect My Everyday Life
The NIDILRR-funded project Improving Assessment of Opioid Use Disorder in People with Disabilities Related to Chronic Musculoskeletal Pain (90DPGE0006) published a new brief, What I Want My Doctor to Know About How Arthritis and Chronic Pain Affect My Everyday Life (PDF). The brief is based on interviews conducted with people living with a disability due to arthritis who are on long-term opioids or have stopped taking opioids after developing opioid use disorder (OUD). The brief discusses what matters most to people living with disability and chronic pain, what they want their doctors to know, and how doctors can improve the care they provide, including explaining the signs and symptoms of OUD and outlining other options for pain management.

News items: 

Grand Rounds Tackles Emergency Preparedness and SCI
The NIDILRR-funded Northern New Jersey Spinal Cord Injury System Center (NNJSCIS) (90SI5026) recently hosted an episode of the SCI Grand Rounds on emergency preparedness and SCI. Uh-Oh, the Sky is Falling: Emergency Preparedness for People with Spinal Cord Injury featured a presentation by Robin Bischoff, nurse manager of the SCI unit at Kessler Foundation, who discussed the lessons learned from recent weather events like Hurricanes Harvey and Irma, the importance of planning ahead, signing up for emergency alerts and assistance, and sheltering in place whenever possible.

Grantee event: 

Webinar: ADA Live! Do You Want a Job or a Career? Reflections on National Disability Employment Awareness Month (NDEAM)
The NIDILRR-funded Southeast ADA Regional Center (90DP0090) will host the 73rd episode of ADA Live!, Do You Want a Job or a Career? Reflections on National Disability Employment Awareness Month (NDEAM), October 2nd, 1-1:30pm ET. Presenters will share their thoughts on NDEAM and will discuss the challenges that people with disabilities may face in seeking and maintaining employment. Presenters will also discuss how advocacy and self-advocacy help with career success and why the unemployment rate remains high for people with disabilities. No registration is required. Questions may be sent in advance.

Webinar: Accessible Toilet Rooms
The NIDILRR-funded Great Lakes ADA Regional Center (90DP0091) will host a webinar, Accessible Toilet Rooms, October 3rd, 2:30-4pm ET. Presenters will review requirements for toilets and toilet compartments, urinals, lavatories and mirrors, doors, turning space, dispensers, and amenities such as baby-changing tables. They will also explain how these provisions apply and interrelate in the design of single- and multi-user restrooms in compliance with the Americans with Disabilities Act (ADA) and Architectural Barriers Act (ABA) Accessibility Standards. Registration is free and required. Continuing education recognition is available.

Elsewhere in the Community: 

NCCIH Covers Mind and Body Approaches for Chronic Pain
The National Center for Complementary and Integrative Health (NCCIH) at the National Institutes of Health (NIH) has published the latest edition of NCCIH Clinical Digest for Health Professionals, Mind and Body Approaches for Chronic Pain, which summarizes current scientific research about mind and body approaches for chronic pain, including fibromyalgia, headache, osteoarthritis, and low-back pain. This issue includes information for clinicians and people living with chronic pain, such as clinical guidelines, condition descriptions, summaries of current research, and information on clinical trials.