News and Notes 383 October 9

In observance of International Augmentative and Alternative Communication (AAC) Awareness Month, NARIC looks at the use of AAC by people with amyotrophic lateral sclerosis (ALS), how animation helps children with autism learn to use AAC, and how developers can gather feedback from AAC users to build better technology in its Research in Focus series; The Learning and Working During the Transition to Adulthood Rehabilitation Research and Training Center (Transitions ACR) publishes new tip sheet, For Families or Caregivers: Self-Care is Putting on YOUR Oxygen Mask First; the Rehabilitation Research and Training Center on Employment Policy and Measurement (EPM-RRTC) and the RRTC on Disability Statistics and Demographics (Stats RRTC) publish the September National Trends in Disability Employment (nTIDE) Jobs Report, showing  economic indicators flattened in September for Americans with disabilities among signs of softening of the overall labor market; principal investigator for the Advanced Rehabilitation Research Training Center in Neuromuscular and Neurodevelopmental Disorders and the Rehabilitation Research and Training Center on Neuromuscular Diseases receives the Distinguished Researcher Award from the American Association of Neuromuscular and Electrodiagnostic Medicine (AANEM); the Mid-Atlantic ADA Regional Center hosts webinar, Community-Based Recreation: Designing Programs for School-Aged Children with Disabilities; the Spaulding Hospital-New England Regional Spinal Cord Injury Center (SNERSCIC) hosts lecture and webcast, Management of Chronic Central Neuropathic Pain Following Spinal Cord Injuries and Disorders (SCI/D); the Rehabilitation Research and Training Center on Vocational Rehabilitation (VR) Practices for Youth and Young Adults hosts webinar, Exploring the State of VR Practices and Serving Youth: Current Thinking and Recommendations; in observance of Attention-Deficit/Hyperactivity Disorder (ADHD) Awareness Month, the National Institute of Mental Health (NIMH) at the National Institutes of Health hosts Twitter Chat on ADHD, covering signs, symptoms, treatments, current research, and tips for helping children and adults with ADHD.

Date sent: 
2019-10-09
NARIC news: 

October is International Augmentative and Alternative Communication (AAC) Awareness Month, organized by the International Society for AAC. AAC is a method of communicating through the use of gestures, body language, sign language, pictures and symbols, and communication apps and speech generating devices like the ones used by physicist Stephen Hawking. In a webcast series from the NIDILRR-funded Rehabilitation Engineering Research Center on AAC, people with disabilities shared their perspectives on AAC and how it is a key piece of their independence, facilitating communication at school, at work, and in the community. In our Research In Focus series, we've looked at how people with amyotrophic lateral sclerosis (ALS) use AAC and social media to stay connected to their community, how animation helps children with autism learn to use AAC, and how developers can gather feedback from AAC users to build better technology. To learn more about AAC, visit the AbleData database, which includes more than 2,200 AAC products and solutions.

Resource Highlight: 

For Family or Caregivers: Self-Care is Putting on YOUR Oxygen Mask First
The NIDILRR-funded The Learning and Working During the Transition to Adulthood Rehabilitation Research and Training Center (Transitions ACR) (90RT5031) has published a new tip sheet, For Families or Caregivers: Self-Care is Putting on YOUR Oxygen Mask First (PDF). This tip sheet discusses the importance of self-care for families and caregivers, the benefits of self-care, and how to make time for self-care. The tip sheet also includes a checklist of self-care activities, resources about self-care, and a list of parent and support group organizations. This project is also supported by the Substance Abuse and Mental Health Services Administration (SAMHSA).

News items: 

nTIDE: Indicators Level Off for People with Disabilities
The NIDILRR-funded Rehabilitation Research and Training Center on Employment Policy and Measurement (EPM-RRTC) (90RT5037) and the RRTC on Disability Statistics and Demographics (Stats RRTC) (90RTGE0001) have published the September National Trends in Disability Employment (nTIDE) Jobs Report, an analysis of the latest Jobs Report from the Bureau of Labor Statistics. According to the report, economic indicators flattened in September for Americans with disabilities, amid signs of softening of the overall labor market. The report also discusses National Disability Employment Awareness Month as a time to focus on the contributions of people with disabilities to workplaces in the US and how people with disabilities are continuing to strive to recover from the impact of the Great Recession. This report was discussed in the most recent nTIDE Lunch & Learn, archived on the project website.

NIDILRR Researcher Receives Distinguished Researcher Award
Craig McDonald, MD, principal investigator for the NIDILRR-funded Advanced Rehabilitation Research Training Center in Neuromuscular and Neurodevelopmental Disorders and the Rehabilitation Research and Training Center on Neuromuscular Diseases (1998-2014) (90AR5030, 90RT5001), will receive the Distinguished Researcher Award from the American Association of Neuromuscular and Electrodiagnostic Medicine (AANEM). This award is given to individuals who have made continuous significant contributions to clinical neurophysiological, neuromuscular, or musculoskeletal research. Dr. McDonald receives this award in recognition of the multitude of outstanding contributions he has made to research regarding the comprehensive diagnosis, treatment, and management of neuromuscular diseases, with particular emphasis on Duchenne muscular dystrophy.

Grantee event: 

Webinar: Community-Based Recreation: Designing Programs for School-Aged Children with Disabilities
The NIDILRR-funded Mid-Atlantic ADA Regional Center (90DP0089) will host a webinar, Community-Based Recreation: Designing Programs for School-Aged Children with Disabilities, October 15th, 2-3pm ET. Presenters will discuss the Continuum of Therapeutic Recreation and the basics of designing programs for children with disabilities in specialized and inclusive environments. Presenters will also discuss methods of building structure within a program, ways to establish expectations that are clear and transparent, and how to analyze the needs of the program participants through assessment tools to develop reasonable accommodations. Registration is free and required. Certificates of participation are available for a small fee.

Lecture and Webcast: Management of Chronic Central Neuropathic Pain Following Spinal Cord Injuries and Disorders
The NIDILRR-funded Spaulding Hospital-New England Regional Spinal Cord Injury Center (SNERSCIC) (90SI5021) will host a lecture and webcast, Management of Chronic Central Neuropathic Pain Following Spinal Cord Injuries and Disorders (SCI/D), October 17th, 6:30-8pm ET, as part of the Knowledge in Motion lecture series. Presenters will discuss the different types of pain following SCI/D, challenges to analgesic treatments, and the complex set of pain mechanisms coexisting following SCI/D that often requires treatments be individualized. Registration is free and required.

Webinar: Exploring the State of VR Practices and Serving Youth - Current Thinking and Recommendations
The NIDILRR-funded Rehabilitation Research and Training Center on Vocational Rehabilitation (VR) Practices for Youth and Young Adults (90RT5034) will host a webinar, Exploring the State of VR Practices and Serving Youth: Current Thinking and Recommendations, October 17th, 3-4:30pm ET. Presenters will highlight the results of a study on promising practices and trends that impact the ability of VR agencies to effectively serve youth in transition and will offer recommendations to the field on addressing gaps in practice and capacity. Presenters will also discuss the relationship between research findings and service delivery, policies, and practices on the local, state, and national levels. Registration is free and required.

Elsewhere in the Community: 

NIMH Twitter Chat: Attention-Deficit/Hyperactivity Disorder
In observance of Attention-Deficit/Hyperactivity Disorder (ADHD) Awareness Month, the National Institute of Mental Health (NIMH) at the National Institutes of Health will host a Twitter Chat on ADHD, October 16th, 3-4pm ET. The chat will cover signs, symptoms, treatments, current research, and tips for helping children and adults with ADHD. NIMH experts will be available to discuss the topic and answer questions live on Twitter. To follow the chat, follow NIMH's Twitter handle and use #NIMHchats on Twitter. No Twitter account is needed to follow the chat, but users must be logged into an active account to ask questions and comment on the chat. An archive of the chat will be posted on NIMH's website following the event.