RehabWire - Volume 4, Number 9 & 10: Special Edition
RehabWire for December looks at research on diet, exercise, and health promotion for people with disabilities. This special edition features a separate issue on general reference selections for 2002 (see inside).
NIDRR Projects: Research in the New Millennium
Improving Muscular Use and Cardio-Respiratory Demand in Spinal-Cord-Injured Patients Performing Functional Electronically Stimultaed Leg Cycle Ergonometry, University of California/Davis (H133G020137) led by Maury Hull, PhD. Kristi E. Wilson, PhD, Project Officer.
Abstract: This project develops new stimulation patterns for a functional electrically stimulated (FES) leg cycle ergometer (LCE) that enable spinal-cord-injured persons to exercise with greater benefit.
Rehabilitation Research and Training Center in Neuromascular Disease, University of California/Davis (H133B980008) led by Craig McDonald, MD. Theresa San Agustin, MD, Project Officer.
Abstract: This project conducts research designed to enhance the quality of life of people with neuromuscular diseases. Program areas include: interventions to preserve functional capacity including management of weakness and respiratory insufficiency due to muscle wasting, exercise interventions, treatment of exercise related fatigue, pain intervention, and dietary interventions. Find out more at: www.rehabinfo.net
Rehabilitation Research and Training Center on Aging with a Disability, Los Amigos Research and Education Institute, Inc. (LAREI) (H133B980024) led by Bryan J. Kemp, PhD. Kristi E. Wilson, PhD, Project Officer.
Abstract: This project assists people who are aging with a disability by conducting a series of research studies using a database of more than 1,000 people who represent a variety of disabilities. Research projects include the natural course of aging with a disability, preventing secondary complications such as diabetes and thyroid disorders, and improving bone density through a regimen of exercise and vitamins.
Find out more at: www.agingwithdisability.org
Rehabilitation Engineering Research Center on Recreational Technologies and Exercise Physiology Benefiting Persons with Disabilities (RERC Rec-Tec), University of Illinois at Chicago (H133E020715) led by James H. Rimmer, PhD. William Peterson, Project Officer.
Abstract: This program researches access to recreational opportunities and physical endurance of people with disabilities, targeting four primary areas: (1) increased access to fitness and recreatione environments; (2) interventions to increase physical activity and recreation participation; (3) adherence strategies to reduce physical activity relapse and dropout rates; and (4) randomized clinical trials to evaluate improvements in health and function.
Secondary Prevention Trial of Exercise and Diet for Improvement of Physical Fitness, Independence, and Overall Health in Adult Paraplegics, University of Illinois/Chicago (H133G990143) led by Carol Braunschweig, PhD. Theresa San Agustin, MD, Project Officer.
Abstract: This project investigates the impact of an exercise intervention coupled with nutrition education on the strength and fitness of a sample of overweight paraplegics with chronic illnesses. This intervention improves cardiovascular fitness and strength leading to improved independence and improved overall health.
Find out more at: www.uic.edu/orgs/sci-adapt.
Project PATH (Promoting Access, Transition, and Health), University of New Hampshire (H133G000150) led by Janet Sable, PhD. Theresa San Agustin, MD, Project Officer.
Abstract:This project performs a randomized, controlled trial of Project PATH (Promoting Access, Transition, and Health), a community-based health promotion wellness program for people with new spinal cord injuries (SCIs). This health-promoting program involves a variety of interventions including wellness education, an individualized fitness program, recreation skill development with family and friends, community accessibility and advocacy, and peer advising.
Find out more at: www.unh.edu/rmp/rmpfiles/path.htm.
Rehabilitation Research and Training Center: Health and Wellness Consortium, Oregon Health and Science University (H133B990019) led by Gloria Krahn, PhD. Theresa San Agustin, MD, Project Officer.
Abstract: The Center has a comprehensive program of research, training, technical assistance, and dissemination with primary attention given to the physical and mental aspects of health for people with long-lasting disabilities. Interconnected research areas include evaluating health assessment definitions, practices, policies, and measurement; their impact on health promotion; and investigating the relationship between selected health maintenance strategies and the incidence and severity of secondary conditions and other functional outcomes.
Find out more at: www.healthwellness.org.
Health Promotion for Women Aging with Disability, Baylor College Medicine (H133G000226) led by Rosemary B. Hughes, PhD. Theresa San Agustin, MD, Project Officer.
Abstract: This project studies whetehr an intervention to improve self-efficacy and connectedness improves health-promoting behaviors, which is related to improved physical and psychological health. The research is based on two hypothesis: First, women aging with physical disabilities who participate in a health promotion workship intervention report higher levels of connectedness and self-efficacy in disability management after the intervention and at a three-month follow-up; and second, connectedness in social and intimate relationships and self-behaviors, which predict physical and psychological health outcomes among women aging with physical disabilties, when severity of disability and socioeconomic status are controlled.
Find out more at: www.bcm.tmc.edu/crowd.
New Research: Selections from REHABDATA
Nash, N.S., Jacobs, P.L., Woods, J.M., Clark, J.E., Pray, T.A., PUmarejo, A.E. (2002) A comparison of 2 circut exercise training techniques for eliciting matched metabolic responses in persons with paraplegia. Archives of Physical Medicine and Rehabilitation, 83(2), 201-209. W.B. Saunders, a Harcourt Health Sciences Company. Accession Number: J43750.
Abstract: Study compared the effects of circuit resistance training on a multistation isointertial exercise system (MultiGym) or on a costumized system of resistance bands (ElasticGym) by persons with paraplegia. No significaneffects of test condition were observed on acute metabolic response or heart rate. Average rating of preceived exertion was significantly higher in testing under the ElasticGym condition.
Gur, H., Cakin, N., Akova, B., Okay, E., Kucukoglu, S. (2002) Concentric versus combined concentric-eccentric isokinetic training: Effects on functional capacity and symtpoms in patients with osteoarthrosis of the knee. Archives of Physical Medicine and Rehabilitation, 83(3), 308-316. American Congress of Rehabilitation Medicine. Accession Number: J43673.
Abstract: Study compares the effects of concentric and combined concentric-eccentric isokinetic resistance training on functional capacity, symptoms, muscle strength, and cross-sectional area in patients with osteoarthrosis of both knees. The results indicate that those using concetric-eccentric had greater improvement in functional capacity than those using concentric; however, improvements in pain measurements were better in the concetric group compares with the concentric-eccentric group.
Mercer, T.H., Crawford, C., Gleeson, N.P., Naish, P.F. (2002) Low-volume exercise rehabilitation improves functional capacity and self-reported functional status of dialysis patients. American Journal of Physical Medicine and Rehabilitation, 81(3), 162-167.Association of Academic Physiatrists. Accession Number: J43847.
Abstract: Study examines the effects of low-volume exercise on the functional capacity and self-reported functional status of dialysis patients. Results revealed significant improvements in objectively determined walking and stair-climbing ability, self-reported walking speed, and self-reported exercise tolerance for the experimental group.
Greenlund, K.J., Giles, W.H., Keenan, N.L., Croft, J.B., Mensah, G.A. (2002) Physician advice, patient actions, and health-related quality of life in secondary prevention of stroke through diet and exercise. Stroke, 33(2), 565-571. American Heart Association. Accession Number: J43906.
Abstract: Study examines the prevalence of physician counseling on actions to reduce the risk of stroke, whether patients followed the physicians' advice, and whether engaging in these actions resulted in differences in health-related qualifty of life.
Rimmer, J.H., Braddock, D. (2002) Health promotion for people with physical, cognitive, and sensory disabilities: An emerging national priority. American Journal of Health Promotion, 16(4), 220-224. University of Illinois/Chicago. Accession Number: J43960.
Abstract: Article emphasizes the importance of health promotion for people with physical, cognitive and sensory disabilities which includes efforts to prevent secondary conditions associated with the primary impairment. Discusses the impact of physical activity, nutrition, and health behavior on disability. Describes three health promotion programs for people with physical and cognitive disabilities.
Martin, K.A., Latimer, A.E., Francoeur, C., Hanley, H., Watson, K., Hicks, A.L., McCartney, N. (2002) Sustaining exercise motivation and participation among people with spinal cord injuries: Lessons learned from a 9-month intervention. Palaestra, 18(1), 38-40, 51. Accession Number: J44006.
Abstract: Following a 9-month exercise training program for people with spinal cord injury (SCI), focus group discussions were conducted to elicit perceived benefits and barriers to exercise in general, as well as suggestions for ways to promote exercise in general, as well as suggestions for ways to promote exercise among people with SCI. Benefits included physical gains and an improved sense of well-being. Participants indicated that accessibility, personal trainers, and social support motivated them the most to overcome barriers.
Suman, O.E., Mlcak, R.P., Herndon, D.N. (2002) Effect of exercise training on pulmonary function in children with thermal injury. Journal of Burn Care & Rehabilitation, 23(4), 280-293. University of Texas Medical Branch American Burn Association. Accession Number: J44064.
Abstract: Study examined the effects of an exercise program un pulmonary function in the exercise program that was not observed in the no-exercise control group.
Stulbarg, M.S., Carrieri-Kohlman, V., Demir-Deviren, S., Nguyen, H.Q., Adams, L., Tsang, A.H., Duda, J., Gold, W.M., Paul, S. (2002) Exercise training improves outcomes of a dyspnea self-management program. Journal of Cardiopulmonary Rehabilitation, 22(2), 109-121. American Association of Cardiovascular and Pulmonary Rehabilitation and the Canadian Association of Cardiac Rehabilitation. Accession Number: J44086.
Abstract: Study examined how the addition of supervised exercise training to a self-management program, as well as the number of training sessions, affects dyspnea (shortness of breath), exercise performance, and health-related quality of life (HRQL). Results indicated a dose-dependent improvement in dyspnea and exercise performance with an increasing number of supervised exercise sessions. Improvements in HRQL were comparable across treatment groups.
Lieberman, L.J. (2002) Fitness for individuals who are visually impaired or deafblind. RE:view, 34(1), 13-23. Accession Number: J33101.
Abstract: Article suggests physical activities for people who are deafblind or visually impaired to improve their health-related fitness. Activities discusses includes running, bicycling, swimming, aerobics, and exercise training in health clubs or at home.
Brown, S. (2002) Readings in independent living: New directions in living well. Rehabilitation Research and Training Center on Independent Living Center Management and Services, Independent Living Research Utilization (ILRU) at The Institute for Rehabilitation and Research (TIRR). Accession Number: O14355.
Abstract: Describes New Directions fitness facility and Living Well with a Disability program, a wellness progrma of which New Directions is a part. Living Well is an 8-week program that promotes health and wellness as a means of reducing the significance and occurrence of secondary conditions. It includes workshops on goal setting, problem solving, communication, pain management, depression, and nutrition.
Woodward, J. (ed.) (2002) Learning Disabilities Research and Practice, 17(3), 141-203. Council for Exceptional Children (CEC). Accession Number: R08262.
Abstract: The articles in this special issue focus on findings from the REACH projects. The REACH institute was funded by the U.S. Department of Education, Office of Special Education Programs to conduct research on how to provide support for students with disabilities in grades 4 through 8 in general education settings. The articles report on REACH research studies, including: a peer book discussion in a language arts classroom; a debate among sixth graders about the desirability of early 20th-century American immigration in a social studies classroom; including students with learning disabilities in classroom discussions of problem solving in math; and supporting inclusion through case-based vignette conversations.
Turnbull, R., Turnbull, A., Shank, M., Smith, S., Leal, D. (2002). Exceptional lives: Special education in today's schools, 3rd edition. University of Kansas Merrill/Prentice Hall. Accession Number: R08248.
Abstract: Textbook for the preparation of special and general educators. The authors use the stories of real students with real disabilities to describe the characteristics, causes, and challenges that both general and special education teachers must consider when making decision about how, where, and what to teach.
Each year, NARIC's collectiong rows to include the latest reference volumes. These may come from NIDRR grantees, from well-established publishers, and from small-press establishments. Contact NARIC for more information on any of these selections.
Omnigraphics continues their series of Sourcebooks with these volumes added to the NARIC collection in 2002. Each includes a glossary of subject-specific terms and a directory of resources for additional help. These books are available from the publisher. Call 800/234-1340 for more information.
Bellenir, K., (ed.) (2002) Cancer sourcebook for Women. Health Reference Series, Second Edition. Accession Number: R08221.
Abstract: Book provides basic consumer health information about gynecologic cancers and related concerns. Presents facts about cancer risk factors, screening and prevention, treatment options, and reports on current research initiatives.
Bellenir, K. (ed). (2002) Pain sourcebook. Health Reference Series, Second Edition. Accession Number: R08222.
Abstract: Book provides basic consumer health information about emphysema, pneumonia, tuberculosis, asthma, cystic fybrosis, and other lung disorders. Includes facts about diagnostic procedures, treatment strategies, disease prevention efforts, and such risk factors as smoking, air pollution, and exposure to asbestos, radon, and other agents.
Matthews, D.D. (ed.) (2002) Alternative medicine sourcebook. Health Reference Series, Second Edition. Accession Number: R08255.
Abstract: Book provides basic consumer health information about complementary and alternative medical practices. Provides alternative treatments for specific diseases and conditions, including cancer, diabetes, hepatitis C, headaches, menopause, and pain management.
Matthews, D.D. (ed.) (2002) Attention deficit disorder sourcebook. Health Reference Series, First Edition. Accession Number: R08273.
Abstract: Book provides basic consumer health information about attention deficit/hyperactivity disorder in children and adults including causes, symptoms, diagnostic criteria, and treatment options such as medications, behavior therapy, coaching, and homeopathy. Provides reports on current research initiatives, legal issues, and government regulations.
Shannon, J.B. (ed). (2002) Stress-related disorders sourcebook. Health Reference Series, First Edition. Accession Number: R08258.
Abstract: Book provides basic consumer health information about stress and stress-related disorders, including stress origins and signals, environmental stress at work and home, mental and emotional stress associated with depression, posttraumatic stress disorder, panic disorder, suicide, and the physical effects of stress on the cardiovascular, immune, and nervous systems. Presents information on stress management techniques.
Batshaw, M.L. (ed.) (2002) Children with disabilities, 5th edition. Paul H. Brookes Publishing Co., P.O. Box 10624, Baltimore, MD 21285. Accession Number: R08243.
Abstract: Textbook addresses developmental disabilities and related matters. Contains thirty-eight chapters covering various disabilities, intervention, education, and integration. Appendices include a glossary and lists of disorders of metabolism, commonly-used medications, and resources for children with disabilities.
Bender, W.N. (2002) Differentiating instruction for students with learning disabilities: Best teaching practices for general and special educators.Corwin Press, Inc. Accession Number: R08254.
Abstract: Text identifies strategies and tactics for teachers to use to improve reading comprehension, language arts, and math skills in students with learning disabilities in special education and inclusive general education classrooms.
Cooper, L.D. (2002) Insurance solutions: Plan well, live better: A workbook for people with a chronic disease or disability. Demos Medical Publishing. Accession Number: R08272.
Abstract: Guide offers practical advice for people with a chronic disease or disability on finding insurance that adequately covers disability-related costs.
Danford, G.S., Tauke, B. (eds.) (2002) Universal Design: New York. Accession Number: R08256.
Abstract: Book presents design criteria and universal design guidelines for New York City architects and building developers. Contains examples of universal design, show how universal design can be implemented, and encourage the adoption of universal design.
Drowning, J.E. (2002) Including students with severe and multiple disabilities in typical classrooms: Practical strategies for teachers, second edition. Paul H. Brookes Publishing Co. Accession Number: R08213.
Abstract: Book on strategies for teachers of students with sever and multiple disabilities in general education classrooms, from preschool through high school. The book discusses instructional methos to reach students with and without disabilities.
Factor, S.A., Weiner, W.J., eds. (2002) Parkinson's Disease: Diagnosis and clinical management. Accession Number: R08220.
Abstract: Comprehensive overview of Parkinson's disease. Topics include history, clinical presentation, behavioral and psychiatric manifestations, pathology and neurochemistry, diagnosis, etiology and pathogenesis, drugs, treatment issues, surgery, subtypes of Parkinsonism, and social issues.
Fraser, R.T., Clemmons, D.C., Bennett, F. (2002). Multiple sclerosis: Psychosocial and vocational interventions. University of Washington. Accession Number: R08206.
Abstract: Training text for vocational rehabilitation counselors or other health professionals concerned about the psychosocial status of their clients with multiple sclerosis.
Goldstein, H., Kaczmarek, L.A., English, K.M. (eds.) (2002) Promoting social communication: Children with developmental disabilities from birth to adolescence. Paul H. Brookes Publishing Co. Accession Number: R08245.
Abstract: Books presents the bases and model for developing skills and provides a chronological approach to promoting social and communication skills accross four age groups: infants and toddles, preschool children, school-age children, and adolescents.
Halper, J., Holland, N.J. (eds.) (2002). Comprehensive nursing care in multiple sclerosis, 2nd edition. Demos Medical Publishing. Accession Number: R08253.
Abstract: Text on the comprehensive nursing care of people with multiple sclerosis (MS) provides an overview of MS and its implications for nursing practice; a discussion of theoretical concepts, research and clinical trials; and an overview of symptom management. Appendices include a list of resources and medications commonly used in MS management.
Jackson, L., Panyan, M.V. (2002) Positive behavioral support in the classroom: Principles and practices. Paul H. Brookes Publishing Co. Accession Number: R08200.
Abstract: Book presenting a cohesive framework for implementing positive behavioral supports (PBS) for students with challenging behaviors in grades K-12. The book describes the characteristics and processes of a PBS program, including planning and assessment, and implementation of PBS in school and community settings.
Ostroff, E., Limont, M., Hunter, D.G. (2002) Building a world fit for people: Designers with disabilities at work. Adaptive Environment Center. Accession Number: R08257.
Abstract: Presents the biographies of 21 people with disabilities who are active in the design of universally accessible environments.
Reichle, J., Beuckelman, D.R., Light, J.C. (eds.) (2002) Exemplary practices for beginning communicators: Implications for AAC. Paul H. Brookes Publishing Co. Accession Number: R08244.
Abstract: Textbook provides information on augmentative and alternative communication (AAC) systems for children and adults at the very initial stages of communication and language development. Fourteen chapters cover topics related to beginning communicators.
Storey, K., Bates, P., Hunter, D. (eds.) (2002) The road ahead: Transition to adult lifefor persons with disabilities. Training Resource Network, Inc. Accession Number: R08250.
Abstract: Book is a resource for people with disabilities and their families, presenting information on transitioning from school to adult life. Chapter topics include person-centered transition planning, instructional assessment, systematic instruction, career development, adult employment, modifying and managing employment practices, social life, quality of life, supported living, and postsecondary education for students with disabilities.