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Self-Determination Technology Long Survey

Author(s): 
Cook, Judith PhD
Project title: 
UIC National Research and Training Center on Psychiatric Disability
Project Number: 
H133B000700
Tool type: 
Survey
Tool class: 
Nonengineering tool
Disability targeted: 
Psychiatric disabilities
Study target: 
People with psychiatric disabilities who may or may not be receiving services
Study purpose or goal: 
To assess access to and barriers to technology and the level of self-determination in the lives of people with psychiatric disabilities or other mental health concerns
Ease of use: 
Very easy
Time to complete: 
15 - 20 minutes
Equipment required: 
Computer with Internet connection
Are any approvals required?: 
IRB
How is it administered?: 
Completed by: Participants
What is the scope or what areas does it cover?: 
The survey covers issues in technology, full choice in life and treatment decisions, and use of services. No names or IP data is collected. There are several sensitive issues: use of mental health services and/or medication, and issues of self-determination
Development background: 
In the development of the Self-Determination Technology Long Survey, researchers conducted literature and database reviews in Psychlit, ERIC, and REHABDATA, among others. These reviews looked at the other technology surveys, like the Pew survey and the census, and the use of technology among people with disabilities. Literature searches were also conducted on the broad topic of self-determination. Consultations were made with other researchers, particularly in how to mount a web-based survey.
Development methodology: 
Two different consumer groups were developed, one on technology and one on self-determination, to pilot the surveys. Questions were submitted by consumer groups, then narrowed down to the core issues.
Outside consultation: 
Consultations were made with other researchers, particularly in how to mount a web-based survey
Consumer input: 
Questions were submitted by consumer groups
Can this development process be used elsewhere?: 
Self determination questions can be generalized to other communities.
Data analysis: 
Is in process
Limitations: 
In this study, a narrow population (overwhelmingly white) participated in the survey, this group is not as restricted in determination
The participants belong to more of a recovered group
A large number of advocates participated, presenting a somewhat biased view.
Findings: 
Data analysis was in the preliminary stage at the time of the interview. The project utilized multivariate statistics for analyses
Interpretations: 
Data analysis was in the preliminary stage at the time of the interview. The project utilized multivariate statistics for analyses
Implications: 
Data analysis was in the preliminary stage at the time of the interview. The project utilized multivariate statistics for analyses
Research methods: 
The survey is presented as a web-based form. It is filled out by study participants, in this case people with mental health issues that may or may not be receiving services
Impact of these findings on the field: 
It is hoped the data gathered will lead to greater awareness and the development of more services for people with psychiatric disabilities
Peer review status: 
unknown
Who uses the collected data?: 
Policy and program personnel, consumers, advocates, those interested in self determination and psychiatric disabilities.
Tool contact: 
Jessica A. Jonikas
Phone: 
312/422-8180, ext. 18 (V), 312/422-0706 (TTY).