In observance of Multiple Sclerosis (MS) Awareness Week, NARIC explores challenges of living with MS and programs and interventions from the NIDILRR community and elsewhere in its Research in Focus series; This Just In... presents a study identifying the factors associated with depressive symptoms in people aging with long-term physical disabilities; this week's Research in Focus explores resources and services that can help caregivers of children with mental health disorders find and keep stable employment; the Thresholds Health Literacy and Wellness Promotion Center publishes the Thresholds 2023 Health Literacy Calendar; the Boston-Harvard Burn Injury Model System Center, Spaulding Harvard Traumatic Injury (TBI) Model System Center, and Spaulding New England Regional Spinal Cord Injury (SCI) Model System Center announce launch of the Finding Strength Podcast, its first two episodes focusing on brain injury as a chronic condition; the Great Lakes ADA Regional Center hosts webinar, The Intersection of Women and Disability, with presenters sharing their experiences of intersectionality as women of color, veterans, advocates, and small business owners with disabilities; the Field Initiated Project on Contingent Employment of Individuals with Disabilities (FIP-CIE) hosts virtual summit, Disability, Entrepreneurship, and the Gig Economy: A Research Summit; the Center for Research, Training and Dissemination of Family Support for People with Disabilities Across the Life Course seeks participants for the Caregiver Advocacy Program, a virtual workshop empowering unpaid family caregivers to learn about caregiving-related policies and how to use their experiences to advocate for change; the Interagency Committee on Disability Research (ICDR) hosts webinar, COVID-19 Data on Individuals with Intellectual and Developmental Disabilities (IDD), part of the Lunch & Learn series offering opportunities for diverse stakeholders to learn about disability research and development activities across the Federal government.
News and Notes from the NIDILRR Community and Beyond Archive
News and Notes from the NIDILRR Community and Beyond is a weekly newsletter featuring news, resources, events, and opportunities to participate in research in disability and rehabilitation. Most of the stories focus on the achievements of the 250+ NIDILRR-funded projects across the US. We also include events and resources from other agencies and organizations. To sign up, go to our home page and enter your email address in the big blue box! Learn how to submit an item for the next newsletter. Are you a current subscriber or reader? We would love to know your opinion on the newsletter and how you share it with your colleagues!
NARIC staff is mourning the loss and honoring the life of Judith Heumann, an activist, pioneer, and international advocate for disability rights and human rights; This Just In... features a NIDILRR-funded study evaluating the perceived helpfulness of interventions for neuropathic pain (NeuP) and its subcategories after SCI; the Rehabilitation Research and Training Center on Disability Statistics and Demographics (Stats RRTC) posts recording of the Release of the Annual Disability Statistics Collection; principal investigator for more than 25 NIDILRR-funded Small Business Innovation Research (SBIR) projects was interviewed for the latest episode of the AT Update podcast, where he discussed the development of the TREAT App, supported in part by the App Factory; the Michigan Spinal Cord Injury Model System Center (MI-SCIMS) hosts webinar, A Conversation on Women's Health and Spinal Cord Injury (SCI); the Great Lakes ADA Regional Center hosts webinar, Inclusive Imagery - Writing Alt-Text Depicting People with Disabilities and Other Marginalized Identities; the Mid-Atlantic ADA Regional Center hosts webinar, Managing Risk and Other Legal Requirements for Businesses under the Americans with Disabilities Act (ADA) Title III; the project Enhancing Community Participation Outcomes Among Young Adults with Serious Mental Illnesses Through Peer-Delivered Decision Support seeks young adult participants with serious mental illnesses for study about their decision making needs related to community participation; the Research and Education to Support the Science of Independent Living for Inclusion and Engagement: National Center of Excellence RRTC (RESILIENCE RRTC) accepting applications for the 2023 Building for Scale Scholars Program; the National Center for Medical Rehabilitation Research at the National Institutes of Health (NIH) hosts workshop, Ableism in Medicine and Clinical Research, seeking to raise awareness of prejudice and discrimination aimed at people with disabilities.
In observance of the 15th anniversary of International Wheelchair Day, NARIC's director Mark X. Odum, a powered wheelchair user, shares his thoughts on this essential technology and an opportunity for wheelchair users to improve coverage for powered seat equipment; This Just In... reviews challenges and opportunities for integrating wireless AT and the Internet of Things (IoT) into the classroom to improve access to education for students with disabilities; in Research in Focus, wheelchair and and complex rehabilitation technology suppliers discuss the efficiency of wheelchair repair services; the Learning and Working During the Transition to Adulthood Rehabilitation Research and Training Center (Transitions ACR) publishes tipsheet, 3 Tips to Improve Communication with Your Youth and Young Adults; researcher from the Disability Employer Practices Rehabilitation Research and Training Center participates in online discussion, For disabled Americans, employment is soaring, for the New York Times Twitter Space; principal investigator for the Disability and Rehabilitation Research Project on Knowledge Translation to Promote Patient-Centered Care Through Use of Standardized Assessments receives the 2022 Audrey Nelson Lectureship Award from the Academy of Spinal Cord Injury Professionals (ASCIP); the Great Lakes ADA Regional Center hosts webinar, Reasonable Accommodations and the Americans with Disabilities Act (ADA): An Update on the Case Law; the project Minority Youth and Centers for Independent Living (MY-CIL) hosts webinar, Advice from the Experts: Minority Youth with Disabilities Share Program Improvement Opportunities with CILs; the Temple University Rehabilitation Research and Training Center (RRTC) on Community Living and Participation of People with Serious Mental Illness (TU Collaborative) seeks adult parents with serious mental illness for participating in study, Engaging Parents and Improving Connections with Children (EPICC): A Randomized Controlled Trial to Enhance Parenting Outcomes of Individuals with Serious Mental Illness; the Rehabilitation Research and Training Center on Employment for People with Physical Disabilities and the Advanced Rehabilitation Research Training Program - Employment are accepting applications for two-year post-doctoral fellowships in research focused on improving employment outcomes; the Equal Employment Opportunity Commission (EEOC) releases Hearing Disabilities in the Workplace and the Americans with Disabilities Act (ADA).
In recognition of a memo from the Centers for Medicare and Medicaid Services (CMS) proposing the coverage under Medicare benefits and Durable Medical Equipment of power seat elevation equipment of powered wheelchairs, NARIC staff highlights NIDILRR-funded projects contributing to the memo in its Spotlight blog; This Just In... presents a study on how people with different types of disabilities engaged in online activities during the COVID-19 pandemic; this week's Research in Focus examines discrepancies in the earnings of people with visual impairments; the Temple University Rehabilitation Research and Training Center (RRTC) on Community Living and Participation of People with Serious Mental Illness (TU Collaborative) publishes Connections Matter 2023 Calendar, exploring topics such as developing meaningful goals and practicing gratitude; research from the Rehabilitation Engineering Research Center on Technologies to Support Aging-in-Place for People with Long-Term Disabilities (RERC TechSAge II) is highlighted in Balancing scientific inquiry with empathy in Generations Today; the Pacific ADA Regional Center hosts webinar, State of Equitable Care for Persons with Disabilities: Fifty Years After Civil Rights Laws; the Great Lakes ADA Regional Center hosts webinar, Accessible Parking and Passenger Loading Zones; the Rehabilitation Research and Training Center for Place-Based Solutions for Rural Community Participation, Health, and Employment seeks participants with disabilities living in rural areas for a study to improve access to services in their communities; the Department of Labor (DOL) Wage and Hour Division hosts webinar, Working While Caring: A Discussion of Workplace Leave for Family Caregivers.
In observance of Black History Month, NARIC staff highlights recent research on experiences of African Americans and other marginalized minority communities living with disabilities and addressing barriers to community participation in its Spotlight blog; This Just In... presents a study exploring the respite, acceptance, and usefulness of a social assistive robotics (SAR) caregiver respite program for older family caregivers of young adults with intellectual and developmental disabilities (IDD); Research in Focus presents study exploring how spending quality time in important activities may be connected to reducing depressive symptoms in people with serious mental illness; the RRTC on Employment of People Who are Blind or Have Low Vision releases new episode of its Employment Insights Podcast; researcher with the Spaulding-Harvard Traumatic Brain Injury Model System Center publishes essay, The complicated legacy of Terry Wallis and his brain injury, in Issues in Science and Technology; the Temple University RRTC on Community Living and Participation of People with Serious Mental Illness (TU Collaborative) hosts webinar, Community Participation and Young Adults with Mental Health Conditions; the Great Lakes ADA Regional Center hosts webinar, Ask an ADA Professional Questions: Parking and the ADA (Part 2), a continuation of the webinar held on January 11th; the Southeast ADA Regional Center hosts webinar, Emergency Preparedness and the Americans with Disabilities Act (ADA), the second of a series of 10 webinars presented on the fourth Thursday of the month; the National Capital Spinal Cord Injury Model System Center seeks participants with spinal cord injury, multiple sclerosis, or spina bifida for study comparing the effectiveness of saline vs. probiotic bladder wash to reduce urinary symptoms; the Family and Youth Services Bureau at the Administration for Children and Families releases two resources to supprt young people with IDD to develop healthy relationships, Digital Citizenship: Adapted Lessons for Youth with Intellectual and developmental Disabilities and Sexual Health Toolkit for Parents of Youth with Intellectual and Developmental Disabilities.
In observance of National Burn Awareness Week as well as anticipation of Valentine's day, NARIC presents a video series from the Model Systems Knowledge Translation Center featuring burn survivors and their partners sharing how they brought intimacy back into their relationships; This Just In... presents findings on the use of GoCC4All, a pervasive technology to provide access to TV to the deafblind community; in this week's Research in Focus, adults with mobility disabilities from marginalized communities describe experiences during the COVID-19 pandemic; the Rehabilitation Research and Training Center (RRTC) on Employment of People Who are Blind or Have Low Vision publishes research summary, A Strategy for Changing Employers' Implicit Attitudes Towards Individuals who are Blind; researchers from the University of Pittsburgh Model Center on Spinal Cord Injury and Assessment and Investigation of New Coverage Policies for Complex Rehabilitation Technology (CRT) Within a Contemporary Accountable Care Environment were interviewed for A Broken Wheelchair Can Bring Life to a Standstill and Create Multiple Problems on NPR's Morning Edition; the Rehabilitation Research and Training Center on Improving Employment Outcomes for Individuals with Psychiatric Disabilities to host webinar, Ask Me Anything: Supervising the Peer Workforce in Behavioral Health Settings; the Mid-Atlantic ADA Regional Center to host webinar, AARP Livable Communities; the Great Lakes ADA Regional Center to host webinar, One State's Lessons Learned and Best Practices to Creating an Equitable Work Environment in State Government; the Rehabilitation Research and Training Center (RRTC) on Community Living and Participation conducts the 2023 Family and Individual Needs for Disability Supports (FINDS) Survey gathering information about the experiences of providing supports to loved ones with intellectual and developmental disabilities (IDD); the National Center on Birth Defects and Developmental Disabilities (NCBDDD) at the Centers for Disease Control and Prevention (CDC) publishes its 2022 Annual Report: Making a Difference Across the Lifespan, providing updates on continuing efforts to identify potential risk factors for birth defects, collect data on children with IDD, protect the health of people with blood disorders, and improve the health of the US adults with disabilities.
In anticipation of the Virtual Release of the Annual Disability Statistics Collection by the Rehabilitation Research and Training Center on Disability Statistics and Demographics, NARIC staff looks in its Spotlight blog at NIDILRR-funded projects using statistics data to understand how people with disabilities are faring today; This Just In... presents a study examining the impact of participation in a program designed to support service providers to transition away from sheltered workshops towards competitive integrated employment (CIE) of individuals with disabilities; Research in Focus highlights the experiences of young parents with mental health conditions navigating the joys and challenges of parenthood; the Model Systems Knowledge Translation Center (MSKTC) publishes factsheet, Obstructive Sleep Apnea After Traumatic Brain Injury (TBI); the Inclusive Information and Communications Technology Rehabilitation Engineering Research Center (RERC) will co-chair with Chief Internet Evangelist at Google for The Future of Interface Workshop exploring future human-computer interfaces that are accessible to all; the Rehabilitation Research and Training Center (RERC) on Promoting Healthy Aging for People with Long-Term Physical Disabilities hosts webinar, Serving Those Aging with a Long-Term Physical Disability During the COVID-19 Pandemic: Challenges, Successes, and Innovations; the Great Lakes ADA Regional Center hosts webinar, Creating and Fostering Inclusive Wellness and Recreation Programs for Individuals with Disabilities; the Rehabilitation Research and Training Center on Community Living and Participation hosts webinar, Overrepresentation of People with Intellectual and Developmental Disabillities (IDD) Moving Between Large State-Run Institutions and the Criminal Legal System; the Rehabilitation Research and Training Center on Employment of People Who are Blind or Have Low Vision seeks adult participants who are blind or have low vision for a Job Search Skills Training Study; the Research and Education to Support the Science of Independent Living for Inclusion and Engagement: National Center of Excellence RRTC (RESILIENCE RRTC) is accepting applications for the 2023 Building for Scale Scholars program; the US Department of Labor publishes blog post, Creating More Equitable Pathways to Good Jobs, discussing the underrepresentation of women, people with disabillities, and people of color in infrastructure fields, such as construction and manufacturing.
In observance of LibraryShelfie Day, NARIC staff snaps Shelfies, posting pictures sharing favorite spots in the library stacks, while filling document requests; This Just In... presents a study assessing racial/ethnic disparities in use of preventive services among adults living with cerebral palsy or spinal bifida; Research in Focus features researchers testing whether a group-based virtual exercise intervention could help people with spinal cord injury increase their physical activity; Minority Youth and Centers for Independent Living released series of research briefs, Making Data on Minority Youth More Accessible for Centers for Independent Living (CILs); GoodMaps at the project Precise Customized Navigation for All, Indoors and Outdoors awarded first prize at the Consumer Technology Foundation Pitch Competition for their Explorer app assisting people with visual disabilities in navigating indoor spaces; the Southeast ADA Regional Center hosts webinar, Americans with Disabilities Act (ADA) Title I: Employment, Disclosure, and Reasonable Accommodation; the National Research Center for Parents with Disabilities hosts webinar, Disabled Parenting Within Multigenerational Families; the Research and Education to Support the Science of Independent Living for Inclusion and Engagement National Center of Excellence RRTC hosts webinar, Built to Scale: Scaling Up Ariadne Labs' TeamBirth, discussing an innovative approach to improve communication and teamwork in childbirth; Increasing Adaptive Babycare Resources and Intervention Supports with Parents and Caregivers with Physical or Vision Disabilities seeks participants for surveys of individuals with disabilities who are parents of children aged 5 or younger and occupational therapists and assistive technologists/rehabilitation engineers providing services for parents; the Administration for Community Living (ACL) hosts Traumatic Brain Injury (TBI) Partners Day; the US Food and Drug Administration (FDA) conducts Patient Listening Sessions, during which people with and without disabilities may share their experiences to help FDA staff better understand what is most important to patients.
During January, which is Braille Literacy Month, NARIC staff looks at braille literacy and how researchers and developers in the NIDILRR community and elsewhere support it in their Spotlight Blog; This Just In... features a study determining the number, length of stay, and charges of rehospitalizations during the first 5 years after the onset of traumatic spinal cord injury; Research in Focus features study offering insights into barriers to paid employment facing youth with severe disabilities; Rehabilitation Research and Training on Employment Policy: Center for Disability-Inclusive Employment Policy Research releases second season of its podcast series, Let's Get To Work: Reimagining Disability-Inclusive Employment Policy Podcast, featuring a diverse group of subject matter experts including people with lived experiences with disabilities, the business community, civil rights, and economics; researcher from the Rehabilitation Research and Training Center on Employment of People Who Are Blind or Have Low Vision receives the 2022 Employment Award from the Mississippi Association for Education and Rehabilitation of the Blind and Visually Impaired (MAER); the Southeast ADA Regional Center launches virtual interview series, Section 504 at 50, celebrating the anniversary of the signing of the Rehabilitation Act of 1973. including Section 504, protecting the rights of individuals with disabilities from discrimination; the Northeast ADA Regional Center hosts webinar, The Year 2022 in Review; the Rehabilitation Research and Training Center on Disability Statistics and Demographics (StatsRRTC) hosts webinar, Virtual Release of the Annual Disability Statistics Section; The Mid-Atlantic ADA Regional Center hosts webinar, Creating Accessible Recreational Gaming; the CARE Study: Community Access Through Remote Eyesight seeks participants for its study to examine how assistive mobile applications support everyday tasks for individuals living with low vision; the Office of Disability Employment Policy (ODEP) at the Department of Labor publishes the Employment-Population Ratio Map and the Median Annual Earnings Map, two interactive data maps to help better understanding the disability employment landscape across the United States.
NARIC staff shares supports that have helped them set and work toward their New Year's resolutions, and invites readers to share theirs, in their Spotlight blog; Research in Focus looks at different social settings where autistic adults make connections; This Just In... features an article presenting findings from a three-year study exploring employment outcomes of certified peer specialists (CPSs) in four U.S. states; the Learning and Working During the Transition to Adulthood Rehabilitation Research and Training Center (Transitions ACR) posts three new episodes of the STAY Tuned: Supporting Transition-Age Youth Podcast; Co-Project Director of the Rocky Mountain Regional Spinal Injury System Center (RMRSIS) awarded a 2022 SCI Research Writing Prize from the Spinal Research Institute in Melbourne-Australia for article on oral health after SCI; research from the Rural Youth Apprenticeship Development Project featured in How We Work Together: The Integrated Knowledge Translation (IKT) Research Casebook, Volume 6; the Great Lakes ADA Regional Center hosts webinar, Overview of the Public Vocational Rehabilitation Program: Eligibility, Services, and Career Planning for Job Seekers with Disabilities; the Southern California Spinal Cord Injury Model System (SoCal-SCIMS) Program at Rancho Los Amigos National Rehabilitation Center hosts The Inaugural Sara J. Mulroy Spinal Cord Injury Symposium - Maximizing Readiness for Rehab: An Interprofessional Approach; the Model Systems Knowledge Translation Center (MSKTC) seeks participants with burn injuries and their families to provide feedback on factsheets on aging with burn injury, amputation after burn injury, and temperature sensitivity after burn injury; the Advanced Rehabilitation Research Training Program - Minority Serving Institutions (MSI) is accepting applications for a two-year post-doctoral fellowship in Solutions-Focused Translational Research to Enhance Equity in Employment Outcomes and Experiences Among Multiply Marginalized Persons of Color with Disabilities; the National Institutes of Health (NIH) Advisory Committee to the Director Working Group on Diversity publishes report of recommendations from its Subgroup on Individuals with Disabilities on supporting the inclusion of people with disabilities in the scientific workforce.
